What is it like when people talk with you, a psychiatric patient?
How do all the areas we are contending with in stigma affecting your interaction with others? – Demonic possession, shame, violent tendencies, weak character, and poor moral choices?
We want to hear from you. Some stories please.
One patient told me that her parents were angry at her teachers when they were advised to consult with a psychiatrist for my patient’s depression. Her parents were so angry, in fact, that they removed her from her private school and enrolled her somewhere else.
I wanted to ask my patient, let’s call her Brianna, how people speak to her now that she has finally engaged in treatment, as an adult! How do her parents reconcile it? How does her church speak to her?
Briana is among many who suffer at stigma, but her best approach would be to ask how she, first speaks to herself, a psych patient. Does she have biased self talk? We need to start with “Me.”
What are the common myths? Get the myths out there.Some of what the community says are true myths and some are not myths.
Treatment skepticism – no recovery, there’s less hope for them
Punishment from God for evildoers.
I am lessened by my affiliation with the mentally ill
The patient is sick after all. We agree. Brain illness and all that. This is Brianna’s identity; her emotions and behaviors paint what she and others see. Perhaps, Briana identifies herself as someone with depression. Someone who went over her church and parents directives. That takes a chunk of courage to do.
Self Care tip: Discuss and discover the self stigma we have about our mental illness.
Why do you get out of bed every morning? To go to work? You think, “Life i is about working and then, someday I’ll die.” Are you living to go to school? Perhaps a student for life, the best is to gather and gather. A klepto of information. Ma skzwybe you live, instead, to stay home and not leave. That can be worth it. Leaving home feels like going to one’s death for many, in fact, with anxiety.
Is what you are living for, worth “living for?” Why didn’t you kill yourself last night?m I’m not asking for “13 Reasons” or glamorizing suicide in any way, like it ois, unfortunately, being done in the media these days. I’m just asking. (Straight face. Eye contact.) Why?
Suicide is increasing, this year up by ~30%. It’s sad but I’ve heard the ignorant say, “When our world is being overrun by humans, this is just one more way to improve population management.” Why anyone would say that, let alone to a psychiatrist, speaks toward the unfortunate person saying it more than anything. Even so, these are the people that contribute to our cultural stigma and sentiment, like the wrong colloid for growth. This stigma is best diminished by peer-to-peer influence. Your voice; you speaking up is the painting over the foul-language graffiti. You speaking of your own journey with suicidality or any related diseases changes the ignorance into empathic knowledge.
We are in the mental health equivalent to the industrial revolution. Fortune. We are wealthy in mental health treatment options. Bling! Bling! It wasn’t too long ago when we were trusting depression medical therapies to crude agents bulky, and bluntly stunning our neuroreceptors. These were a big stick coming down on a flower.
Think of the cart and horse transforming into the automobile; course into sleek and refined; slowly moving and grossly impacting changes, contemporarily working rather as specific rapid responses. Now remember your parent, or mine, who never had the opportunity to receive a treatment that would work in a matter of weeks, and without turning her/him into a zombie-blimp.
A child stands there going through his own vasovagal experience, scared and confused while watching his favorite person in the whole world performing like a broken toy. The child tries to make sense and restabilize their once clarified existence. The parent goes through this at first for about six months and then somehow “gets better.” Was it the prayer that worked? Was Momma finally able to “pull through it?” Was it because the child’s behavior finally became “good enough” to please God who then condescended to make his momma better? Momma does well for another 2 years. She’s connected. She’s filled with purpose. The memory turns into something like, “Boston’s worst winter in fourteen years;” briefly print-worthy and then thankfully, not much more.
Then momma is again dark, hopeless and staying in bed whenever she can. The child, Teddy, is now a preteen of ten. This comes back, like finding another letter from his cheating dad’s girlfriend under a magazine in the back of the closet where his golf clubs are. And instead of six months, Momma’s change lasts about two years. (Can we even call it a “change” when it lasts two years?)
The amorphic improvement comes again though, like a miracle, but who can trust it. Miracles aren’t gotten in vending machines after all. I We can’t buy them with a paycheck.
Sadly, as Teddy feared, another some many months later, Momma drops again. This time she plummets rather than drops, into a drunken, more terrible condition. For longer, and the boy is now a teen. He at first appears more calloused. Yet, if questioned, he will show his grief and bewildered young self, just there behind a gentle touch, or a cluster of inquiring kind words. He loves her well. Why can’t she love him? Moms who love their kids will get up in the morning. They’ll shower and they’ll talk. They don’t write suicide notes or leave their son’s to find them half conscious when they get home from school. Not mom’s who love their kids.
Our moms, yours and mine in the seventies, didn’t have the privilege of taking treatments that worked or worked well, and rapidly. We are so blessed. How to grasp the immense difference in our Age; this Age of mental health revolution.
Now a little boy sees this change in his favorite person in the world. She is fortunate enough to receive medical treatment, and within weeks is “back to myself again.” This little family escaped years of decomposition by the ravaging damages from brain illness.
My grandma, Elsie Louise, (isn’t that a great name!), was washing her laundry in a new machine that decreased her labor by many hours. One day, when she was daydreaming about her young handsome husband, or maybe it was the chicken she lost to the fox, when she screamed, jerking out from a terrible pain in her hand. Her fourth finger was gone. She lost it, pulled off by the twisting force of the machine’s internal grips.
Now we place our laundry in a closed lidded box we just walk away from. We don’t even think about the appendages we are allowed to retain. We don’t imagine the privilege.
In psychiatry, it is like this. The treatments we had generations past were better than none. But, enter now into 2018, and we don’t realize how good we have it. We forgot most of the print-worthy stories back then. Not to use the treatments from this revolution, is going back to the darker ages of medicine. The treatments save lives. They bless. They make us rich in life. Bling! Bling! Look at your wealthy character. Healthy.
Why are you still alive? Whatever you answer, fight for that. Take advantage of the mental health revolution and live well.
Questions: What are some stories of those you have loved who missed out on mental health treatment? What are some stories of those who did not? Where is the difference?
Self-care tip: Speak! We need to hear you. You are painting over the foul-language graffiti of ignorance!
All around me I hear people talking about finding your “True Self.” I hear it in podcasts, coffee shops, in magazines and even books.
What the hell was everyone talking about and if there is such thing, how does one find it?
What is meant by “True Self?”
First, apparently, it depends on who you ask. If you ask a therapist you get a vastly different answer than if you ask a spiritual guide. Honestly, even from one person to the next your answers will vary.
These are all synonyms of this mysterious phrase. After looking at countless websites, I like what the Huffington Post said in the article, “What does it mean to be your Authentic Self by Judith Johnson.” “Living in a place of profound authenticity involves being rooted in your deepest beliefs, values, and truth and living a life that is a true reflection of them. It is about being true to yourself through your thoughts, words, and actions.”
So from what I gather, the true self is something that is within us. Is it nature or nurture? Or is it something in between (the damn gray area that surrounds our lives)? I don’t have an answer for this, but from what I read and what I have experienced, it is a real thing. It’s ingrained deep in our heart and soul.
Why do I care about this?
When I was younger, I was working at a camp in Ensenada for the summer. It was one of the best summers of my life and I felt that I was becoming the best version of myself. That same summer I met a girl (yes, you can roll your eyes now). I fell head over heels for her and we ended up getting married. We were together for fifteen years, and often I would look back and wondered what happened to the man I was becoming and why wasn’t I feeling any closer to being a better version of myself? I felt that I was slipping away and losing myself.
I wrestled with why. Did I fool myself that summer? Did that woman I fell in love with strip me of my manhood? What happened?
The marriage didn’t go. I decided I wanted a divorce, which happened to be one of the first real decisions I had made for myself since I met her. Pain of the failed marriage filled me, but I also felt the emergence of the boy 15 years earlier. My “true self” surface and that I didn’t have to look back in remembrance of that person. I decided that I was going to become the man I had always desired (I do not blame my ex for the hindering of this man, but blame myself. More on this in another post).
I care about the true self because I struggled for years to step on the road and begin the journey. Guilt, shame, and fear were around every corner. This trifecta left me questioning everything I did (and I still struggle with it at times). Being in that dark place is hard, and I want to help others know there is a better way. It’s not the easy way, but it’s the better way. Or as my friend, Major Lewis would say, “The hard right over the easy wrong.”
How do you find your “True Self?”
The easy answer is to be real with yourself. The hard answer is that I only know how I did and it might differ from person to person.
In my first marriage, I was a fraud and could become whomever the person I was talking to wanted me to be. I was like Julia Roberts in, “The Runaway Bride.” Depending on what guy she was with, she liked a different type of egg. Poached with one man. Scrambled with another man. I morphed myself into someone in order to be liked. Sadly this left my true self-hiding behind layers of falsehood. I pushed away those close to me in shame. My unconscious was wreaking havoc on me. I was messed up.
Be true to yourself. Look in the mirror, and know who you are. It takes time and won’t happen overnight. The first time I went to the shoe store to buy shoes after my separation I ran out in a panic because I didn’t even know what shoe I liked.
I started by giving myself permission to experiment. I would try things and then evaluate if I liked it. Slowly, month after month, year after year, I began to understand what I liked. Then I would do more of that. The small steps of trying something new and being honest with yourself will start to open your heart up to seeing deeper questions.
Self-care Tip: Take a chance on yourself. Try something new. If you hate it, great! If you loved it, great! Either way, you are opening yourself up to new opportunities and trying to ignite the flame of your true self.
Brandon Fries lives in Southern California with his lovely wife and daughter. It was through his life struggles that he found a path towards happiness.
Introducing a lovely book written by Leslie Birkland, and Lindsey Denhof, who are sisters who felt compelled to share personal and revealing stories about their father as he fell deeper and deeper into the tragic memory robbing abyss called Dementia. The two sisters narrate their experiences born from different perspectives, but very much driven from the same heart.
Please enjoy and comment. Dementia is everywhere. It affects all of us. Whether we have a parent, a spouse, a friend, or a neighbor with dementia, we are affected. Even if a community member is suffering from this, known or unknown, we are affected, although to differing degrees.
Dementia worldwide is estimated at 47 million and is projected to increase to 75 million by 2030. It is a huge economic impact – in the US, $818 billion dollars a year. People with dementia and those with family members with dementia are often discriminated against. Awareness and advocacy are needed. Dementia is a public health priority. Let us know where you stand. Thank you for reading.
Think of walking in a rainstorm. Your clothes and hair hang heavily. They provide no protection. They offer no remedy. You take a hand towel out of your bag and try to mop up your icy wet face. Wring it out and continue to wipe.
This is like choosing to do all the psychosocial efforts in your life, but missing the biological. Until you treat the underlying illness, much of our efforts to heal are like using a hand towel to dry off in the rain storm. We think that we can get better without medication. Or, we may reject other treatment options, like ECT or TMS. We think false thoughts.
It’s not healthy to take pills.
I’m better than that.
All I need is God.
My parents would be upset, so I shouldn’t.
If my work found out, I’d lose my job. So I shouldn’t.
THC is better.
Exercise is better.
Some of these are entirely false. But some are just partly false, encased in a disconnected truth. This “rain and the hand towel” idea is not an analogy meant to minimize or bring shame to those who choose not to engage in treatment. It is not meant to talk down. Please forgive me for the crudeness and limitations. It is just meant to crack open this idea.
Yesterday, Louise commented that her physician told her taking sertraline, or Zoloft, was like taking “a vitamin for my brain”. That clicked for her! Vitamins were ok.
Question: How has your physician helped you get past not wanting to take treatment? How could your provider do better with this?
Self-care Tip: Allow healing with medical treatment for medical disease.
Why do I feel so horrible when I start a treatment that is supposed to help?
Medication treatments for depression and anxiety, and some other brain illnesses, often worsen how you feel before you feel better. I can’t tell you how many patients have told me that if they had known this before, they never would have stopped their mediation(s).
Yesterday, our post discussed a Dr. Jones and Presley.
Presley fired Dr. Jones when after following her directive, he subsequently experienced an extreme panic attack. Dr. Jones may not have done anything wrong in her treatment recommendations. Presley was just an individual, as compared to a “number on the curve” of treatment responders. Escitalopram, the medication discussed as an example yesterday, (one medication option out of many), may have been dosed at an initial amount that Presley’s body couldn’t handle “straight out of the gait”, so to speak. But likely, if he had started at a lower dose, maybe ½ or even ¼ of the tablet, and then waited for his body to accommodate to the medication. Then Presley would have tolerated it. Presley would have tolerated slowly increasing the medication if approached, rather, piece-by-piece of a pill. I’ll even joke with patients,
I don’t care if you lick the pill. Just get on it.
When slowly titrating a medication, it allows the individual’s neurotransmitter receptors to down-regulate whilst the agent floods the receptors. If there is a neuron targeting another neuron, there’s a baseline balance in time. There is a baseline understanding between these neurons. An agreement, of sorts. “I’ll sit here and receive your messages,” (neurotransmitters, or chemical messengers such as serotonin, norepinephrine, and/or dopamine). “I’ll then carry those messages on your behalf to their intended recipients,” (such as the amygdala or hippocampus). But then this person artificially takes a higher quantity of these messengers, for example, by way of medications, and floods the system. The receivers, (or neuroreceptors), have to adjust to this to establish a new healthy baseline.
In this initial time of treatment, when 1st introduced to the increased neurotransmitter-load, (ex: as released by a tablet of Escitalopram), there can be a negative response, such as panic and/or depression emotions. We call this, “initiation side effect’s.” Once the neuroreceptors get used to the new load, then the response improves.
After accommodating to the new pharmacology, the brain is allowed to experience the blessing that comes from treatments, and heal.
Some individuals are outside of the curve and cannot tolerate the standard initial treatment dosage, like Presley was. Some are inside, and can without much difficulty. The point in treatment, though, is that the person just needs to get on it.
Get on treatment. However you do it. You have to make the treatment work for you, an individual, in your own way. The prescriptions are there to serve you. You aren’t there to serve the medications. I like to analogize Jesus’ statement,
The Sabbath is there for man, not man for the Sabbath.
Make it yours as an individual and reap the benefits; the blessings inherent there. (See Mark 2:27).
If you don’t get on the treatment, you won’t get better. Anything less than this will be inadequate. It’s like drying water off your face with a hand towel while still walking in a rainstorm.
What is your agenda in treatment? List it. Write it out. Then, go get you some!
Outside a medical approach is like flicking water off in the context of a rainstorm. If your agenda is getting to your healthy self. Get out of the storm and get dry. Then go get it.
You have a medical condition. Treat it with the assistance of a medical professional.
I don’t go to a plumber to help with my electrical home repair. I don’t go to an accountant or a church counselor to treat a medical one.
The plumber, the accountant, the church counselor are what they are.This is not minimizing their efficiency in their own fields of excellence. But why do we seek care in psychiatry from those who haven’t studied this? From those who are not experts in this? Maybe stigma keeps us away from psychiatric care. Maybe misinformation directs our search for mental health treatment elsewhere.
Self-Care Tip: Get you some medical therapy for medical illness.
Question: What are further concerns you may have about taking medications? How would you prefer your medical providers to work with you? Please tell us your story.
Presley couldn’t breath. A truck just drove through his thorax. A monster-hand was closing around his heart. He couldn’t swallow well. Was something stuck in there? Dizziness nearly dropped him, but instead of moving to sit down, like any other normal person would do, he bolted. A fire chased him. He had to escape or he would die. In the bathroom where he found himself, the mirror reflected a sweaty face and crazy eyes. Was he dying? Presley’s phone looked blurry as he dialed, 911.
Please help! I’m having a heart attack!
That was the first time this had happened. After the third visit to the emergency room over the past month, Presley was able to avoid calling 911, although still convinced he was going to die when the next episode hit. He agreed to seek counseling, where he was taught different skills to connect his mind and body, to slow his breathing down, to process, even when he was convinced he was dying. For a time, Presley improved. It was like it never happened. He was almost able to convince himself that it wouldn’t happen again.
This turned over and over, feeling like he was going to die while losing his mind, re-engaging in counseling, thinking he was better, stopping counseling, and then another violent emotional event, thinking for sure, he would die.
It was after his second trip to the ER when he received the recommendation to schedule an evaluation with a psychiatrist. But he preferred to work through this in therapy. Presley didn’t like pills. He wasn’t someone who medicated. An olive-skinned athlete, he lived clean and didn’t believe there was much that healthy living couldn’t cure. And Presley did live clean. He ran fifty miles a week. He ate raw foods. He read his Bible.
After several months of this, his therapist, Dr. Wu, recommended he get a psychiatric evaluation. However, Dr. Wu agreed that he would continue to work with him, whatever Presley chose. (Was this the right thing for Dr Wu to do?) Presley chose, no. No psychiatrist. What would a psychiatrist do to him anyway?! He wasn’t crazy. (Except when he thought he was.)
Presley visited his primary medical physician, Dr. Belinda Jones. It had to be better than seeing a shrink!
Dr. Jones, I don’t want to take meds.
Dr. Jones, cleared him for any medical condition that might be contributing to his events. Only then was she able to convince him to try a “safe antidepressant”, escitalopram. After one pill, Presley had the worst event of his life. He’d never had any experience that was more terrifying. Presley didn’t go back to Dr. Jones, “of course.”
When these emotional tornadoes hit more frequently, he became paralyzed with fear that he would have them in public and be humiliated by them. Presley stopped going to work. If it wasn’t for his rent, he’d never go back. But he had to. So finally Presley agreed to see a psychiatrist. …
To be continued
Sincerely, Dr. Q
Questions: What would you tell Presley?
How would you like your physician and/or therapist to handle this, if it were you?
Why is Presley so opposed to taking medical therapies?