When You Are Hurting – Suffering Just Is

Daughters of a father who was trapped in a col...

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My dad, excellent in his suffering, has shown how to lose, how to spend the time it takes to grieve it and enjoy the rest that makes life worth living.  My dad should have a medal in suffering. If I knew where to get them I’d send word.

Some of his suffering, he played a causal part in, but who cares.  It doesn’t have a qualifying relationship to “deserving” empathy and the spiritual nod.  Those come because of Love, not our performance.

None of us are foreigners to suffering others, ourselves, cause, accident, defined and ignominious explanations.  For reason and for lack of reason we suffer.  No, the etiology of suffering isn’t why we care about its abuse.  Sure we hope not to repeat mistakes that lead to suffering and that makes it’s etiology worth reflection, but not as
a qualifier to caring.

So no.

Between one grief and another, between this fault and that fault, the loss “Is.”  It just Is.  That’s Dad’s presence I’m talking about.

In a culture counting and studying our wrongs and our rights for the purpose of squeezing currency out of it, we need presence.  Presence allows for all the rest.  The healing.  The forgiveness.  The grieving.  The hope that remains.  Presence allows for us to continue valued.

Presence allows us to live for what is still worth living for.

After writing blog-post “When You Are Hurting, Remember Why You Want To Live, And Live For That,” I heard from someone suffering via his fabulous on-line monthly journal “Psyche’s Flashlight.”  He said,

I read this after a recent stint in the hospital, and I can’t tell you how much it resonates with me. This is what saved my life.

Suffering Is.

Question:  What has helped keep you away from qualifying your suffering or that of others?  Please tell me your story.

When You Are Hurting, Remember Why You Want To Live, And Live For That

 

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Self-Care Tip #133 – When you are hurting, remember why you want to live, and live more purposefully for that.

My daughter has a viral upper respiratory infection.  She is laying on the floor in her sleeping bag that has the stuffed puppy dog head for a pillow.  She just wants to be near me today while I work.  She wakes up and coughs, I check her out and dose her if she’s febrile.  She goes back to sleep.  Awakens.  Trundles up to drink some mango juice, water, eat 3 noodles, comes down again and lays there, pink in the cheeks, red eyes and chafed upper lip.

Sometimes when one of the kids is sick they stay home if I’m here.  It usually stresses me out but I’ve been getting better at believing more that we can take what comes and still get the work done.  Today, in-between patients, I laid down beside her.  Face-to-face.  She leaned in, opened her eyes and smiled!

She is one of the most delicately framed little people I know.  My nuclear family has never had small bones so this must be from someone on my husband’s side.  My daughter swung that tiny arm, warm with fever over my neck, put her face on mine, and fell asleep.

Lying there, thinking I’m so glad I could do this for her, suddenly felt wrong.  It flip-flopped over in my mind and I realized that I was glad.  But for me.

Having her near me while I work is a connecting force.  To both of us but maybe more for me.  My family has been exchanging this virus for 2 weeks now.  It hasn’t been hell but it has not been a delight.  Yet here I find myself delighted.  I wonder how long I’m going carry this gladness around.

Come what may in this world, it is these surprising moments that convince us about the rest.

In psychiatry, I’m required to ask each patient if they have thoughts of wanting to die.  Then I ask, “What do you want to live for?”  That catches some people off guard and I’ve gotten looks that could defend anyone in war.  But we aren’t at war and eventually they tell me why they want to stay alive another day.

At some level we all answer that question even if indirectly.  Everyone suffers.  If I were asked, my daughter’s smile would be on my list.

I am often amazed by good things that come out of bad.  Knowing that, gives hope.  But it also gives purpose and we can choose to angle ourselves more purposefully towards that rather than passively.  We can choose to live for the reasons we think worth living for.

My husband prays, “God please turn my posture toward you today.”  I’ve always loved that.

Question:  Why do you want to stay alive?  What are you living for?  Please tell me your story.

The Great Lie.

One of the great lies of mental illness is that, “If things weren’t so stressful, I wouldn’t feel so bad.”  Look inside ourselves now and see them.  All the numbered and ranked stressors we tick off to explain how we feel and/or behave.  How about someone we love.  Do we tell them, “Of course you feel that way!  Look at all you’re going through!”

Because major depressive disorder (MDD) is mainstream enough, I’ll use it as an example.  Who, when they are down, doesn’t look for reasons why?  Say there is an additive effect of stressors such as home conflicts, financial duress, and poor sleep.  Since these events, you haven’t felt pleasure, you’ve felt sad and depressed.  You aren’t motivated or interested in your usual.  And where you normally would seek people out when you felt down, to get more energy, now you just want to be alone.  And so on.  You are able to say that you started feeling this way progressively since triggered with those stressors about 3 months-ago.  Before that you were “fine.”

Many people in your life, have told you that you are just going through a bad spell.  You have believed them but say, “Even if this is a bad spell, if it goes on much longer I think I’d rather die.”  Your best friend responds, “Anyone would be depressed if their boss was that evil!”

My answer, “No.”  Feeling down is appropriate to stress when it doesn’t disrupt your life for more than two weeks at this level.  And it is never normal to want to die.  Everyone has stress but not everyone responds to stress in the same way.  Not everyone if put under your same triggers would develop MDD.

Would you have developed this disease if you weren’t put under these stressors?  I can’t say.  We develop illnesses for many reasons.  One of the many reasons is external stress.  A hypothesis supporting this is that stressors trigger our genes for MDD much like we know cancer genes can be turned on by stress.  However, we do not have a direct correlation to the stressors as being entirely causal events.

Even if it were, none-the-less, we are left with the disease process in progress.  It is not an adjustment reaction to stress.  It is medical illness.

Feeling this way is not normal for what you are going through.  Telling yourself that it is, that is the great lie.

Self-Care Tip #118 – Don’t believe the lie if what you’re going through is affecting your function in life.  Be a friend to yourself.

Question:  What whispering lies are you struggling against?  Please tell me your story.

It’s Time To Grow Up

 

 

 

Fragile Annie writes a blog called, “It’s Time To Get Over How Fragile You Are.”  Isn’t that a great name?  She own’s her frailty, own’s that it has affected her life, and own’s what it’s time to do now.  All in a name and a title.

When I was in psychotherapy, talking on about injustices suffered, my feelings, the rightness of my condition – my therapist said, “It’s time to grow up Sana.”  I still feel the punch in my stomach and the quiet immediately following.  I couldn’t breath for a bit.  Just nodded my head.  “Ok.”  …I said, “Ok” a few times.  I don’t remember much else of what he told me but I don’t think I’ll ever forget that.  He’d be satisfied with his work with me if he knew.

After all, it’s not such a small thing to grow up, or “get over” our frailty.  It’s not such a small thing to see our need.  It’s not so little to act on it.  These are things that champions do.  These are things any coach, parent, therapist, teacher would be proud to be a part of.  These are the things that make the difference between falling victim to your history, or claiming the rights to your now and to your future.

Think about what is upsetting you the most.  What seems to keep at you and trip you and keep you back and keep you right where it left you last?  It’s time to grow up.

Self-Care Tip #106 – In Fragile Annie’s own words, “It’s time to get over how fragile you are.”  Be a friend to yourself.

Question:  What has knocked your breath out in a good way, sending you off towards growth?  Please tell me your story.

Your Life. Your Choice. Why Are You Still Negotiating?

 

 

Self-Care Tip #102 – Take what is yours and live.  Be a friend to yourself.

Cheri came, still dressed in work scrubs, with her 2 daughters, 8 years old and 3 years old.  Having finished their dinner date, they were swinging by for her appointment before going home.  Cheri told her kids, “Get out now and go sit in the lobby!  If you don’t listen to me I’ll….”  Turning to me, she said, “It’s never enough!  I just took them to dinner and they do this to me!  No matter what I do…!”

1.  Cheri tells me she’d like to cope better with simple stressors such as redirecting her kids

2.  We talk at length about her perception of her kids abusing her.

Cheri is married.  Her husband laughs at her for “…having to take those drugs to be normal!”  “…But he just sleeps his problems away.  He doesn’t deal with them like I do.  He has no idea!”

3.  We talk more about her perception that her husband is responsible for her place in life.

Cheri believes if she doesn’t take more than 2 pills a day, she is less “dependent” on drugs.  She says, “I don’t want to go on like this!”  Her tears continue talking when her voice stops.  She is ashamed.

4.  The concepts supporting taking care of yourself as being the kick-off point to caring for anyone else comes up.

5.  We talk some more about who is “The Why” for what we do or don’t do.

Cheri feels less shame, but it’s still there.  She is willing to give a new medication a try but clearly doesn’t buy it all yet.  She’s going home with her girls to her husband with new pills.  And hope?  Yes.  It is all connected.  It all pulses together and is a living negotiation of sorts.

Disease <–> behavioral/emotional negative symptoms <–> victim role <–> self-neglect <–> greater crisis <–> seeking help <–> responsible self-care <–>  healing <–> fewer behavioral/emotional negative symptoms <–> emotional abuse from husband may continue but is no longer seen as responsible for personal choices and self-care <–> less shame <–> further healing and so on….  (Lub-dub…Lub-dub…)

 

hbofamily.com

 

Cheri is still negotiating her deal in life.  She doesn’t realize that it’s already hers for the taking.  Her life.  Her choice.

The deal is already made.  Take it or leave it.  Your life to live.

Question:  How are your negotiations?  Do you see them as still in progress or settled.  Please tell me your story.

Sensory Overload

crying-baby

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Sensory overload.  There are some neurodevelopmental disorders that cause heightened sensory awareness.  People might need to brush their arms to be desensitized to the sense of touch.  Or use a vibrating toothbrush or wear shades even with little to moderate light.  I hear most about the senses of touch and hearing from my patients who will hit their head, scratch themselves, or do other self-injurious behaviors to self soothe.

Hearing about these people might feel like you are far removed.  However, many of the general population have some sensory issues although to a lessor degree.  These things come out when we are tired.  When we have multiple emotional stressors.  When we feel trapped or overextended.  It is linked to anxiety and so we may notice tension crawling up our skin or into our throats.  If we could escape we would.  Some people can push through this and make it until a window opens.  Some people end up reacting.

Today I found myself squinting more.  My energy was low and I yawned a lot during clinic which is rude.  My inner milieu had a lot to do with what I was bringing to the table and little to do with what was happening to me or around me.  However, there I was, a player in life.  I did my best.  And then the sound level started going up.  It felt like my skin was lifting up and contracting all at once.  Sound travels so it followed me around the house.  Before I had to put a dollar in the family money jar, I remembered my ear-plugs.  Ah.  Things went down a notch.  I could cope better.

Self soothing.  Babywise by Gary Ezzo and Dr. Robert Bucknam, the much disputed early parenting book, tells new-by’s that babies need to learn to self sooth.  Parents are advised to let their babies cry at night until they quiet down, rather than pick them up and sooth them externally.  Thus teaching  a baby that they can’t use Mom or Dad as a sleep prop.

Many of us even as adults struggle with self soothing.  Awareness of what is bothering us helps.  Getting that awareness might be a deliberate effort or it might come effortlessly.  Either way, knowing what is the trigger helps to know how to respond.  Anyone can describe a time in their life when this didn’t happen and they tried to self sooth in a way that was hurtful to themselves or someone else.

Whatever the feelings are, whatever the stressor, self soothing should be something simple, easy and fairly obvious.  Today, I was surprised at how much better I parented with ear-plugs in place!

“Mommy, why are you wearing earplugs?”…

Question:  What do you think?  Agree or disagree?

Self Care Tip #32 – Self sooth simply.  Be a friend to yourself.

Find your Trust

A knot of tension moving and changing and can’t be trusted is there. Tightness around the eyes and mouth and there is a grim determination not to pull the pin. The determination is supported by love, by choice, by insight, by all that is good.

However, like a dog on a slope, paws outstretched, gripping at the pebbles and dirt, there is the gravity to account for. The mass of triggers accumulated into a planet – kids woke you up and you couldn’t fall back to sleep, emotions, people not keeping their word, your birthday was a flop, knowing that when you get past this moment there will be more and more and more. All this is a force you know you want to suppress.

Wanting is good. But like Randy Travis sings,

I hear tell the road to hell is paved with good intentions, but Momma, my intentions were the best!

Like him, we find ourselves with wings singed, wondering how can we try something new? Whatever we’re doing isn’t working. We want heaven to start right here on earth.

Break it down.

There is the matter of trust. Where do we put it? Where is our hope?

There is the matter of patterned behaviors. Have we put up roadblocks? My kids are delighted to see the growing dollars in our family money jar. They are also delighted when a day goes by when nothing went in there. I see it in their growing comfort around me.

There is the matter of biology. Do we remember that the brain is indeed attached to the rest of our body? Do we remember that emotional health affects the rest of our body? That it is contagious to our kids and partners and families. That we can control it as well as we control our liver function. …That doesn’t mean no control.

But today, I’d like to turn back to trust. Trying to stuff emotions can be like trying to push springs into a box. We know at some point, the lid won’t shut. We can’t trust that method.

Each of us needs to find the answer to that question and hold on to it. That is where our energies go when we succeed. Holding on to what we trust with both hands. Then we can let the rest go. Both hands are occupied so to speak.

This morning, I did that. The most beautiful little girl then came, cuddling me in bed, laughing and joking in a way that I knew could only mean she felt safe. I was rewarded with my own self, present with her and my source of Help. It felt like Christmas.

There is the next moment to contend with and the next – the same way. We can put this in the category of coping skills and biology as well. The brain is messy that way. One thing affects the other.

Self Care Tip #17 – Where is your trust? Hold on to it and nothing else. Be a friend to yourself.

My Essence – A Matter of Love

Betrayal?

Connecting that behaviors are linked to brain health is often confusing. The distance traveled to reach that point may have been long. It may have involved experiences painful to themselves and their loved ones.

For example, they may have lost a job because they couldn’t get out of bed in the morning. A divorce might have come after changing into someone irritable and angry. A trucker might no longer be able to drive on the freeway because of panic. But once they connect that this change in personality relates to a change in their brain health, how do they feel about that?

Some people feel relief. That they didn’t personally fail. That they aren’t a bad Christian. That it wasn’t because they didn’t try hard enough to “feel good,” to stop itching, to get up and do something with their life, to quit gambling, etc… Maybe they feel for a moment that judgment can be suspended for them.

However there is a group of people, maybe overlapping these, who feel betrayed. Betrayed by their very essence. The question of, if they can’t trust themselves, what is real in life at all? They struggle with the shame of betraying their own person. “Who am I if I’m not…?” and the questions roll on. It must be a question for all of us with changing bodies, Who are you if your mind gets sick?

There is the temporal line of thought, that if your brain changes, your memories, your personality, than you change. Your human form is different. Like getting your arm cut off, you have to grieve and grow a new picture of how you see yourself. A changing person through the span of life. This is in fact healthy adaptation.

There is also a thread in this weave of believing that our essence isn’t wholly related to our changing bodies. That somehow when the various curtains of life fall and open and the final curtain comes around, that this bit remains. I don’t think you can believe this unless you believe in a Love which is stronger than death.

Love is stronger than the death of my neurons, my dendritic connections, stronger than the death of my mind.

The adaptability needed for this life is a no-brainer. We can’t survive if we don’t. It takes courage to adapt when your person is changing. It takes courage when you are loosing yourself. Such courage, like someone in war or flight or determined movement that others could only imagine.

But how you define your essence also matters. I see it as a related step, but also apart from these excellent coping skills. I see it as a matter of Love. It’s win-win when Love weaves through you.

Self Care Tip #16 – Choose Love. Be a friend to yourself.

Basic but Effective

Keeping things simple is easier said than done. When I’d come home from a lecture, confused about what happened in there, I’d think I was the problem. Then my brother told me that someone really needs to know what they’re talking about to be able to teach it clearly. Those mostly innocent professors suffered this silent abuse from me thereafter. Everyone needs a defense.

We each often find ourselves listening to the instructions of our own internal dialogue. The familiar sarcasm, “Doctor heal thyself” comes to mind.

Ideally, you would find outside input whenever you could. Ideally you would gather counsel, and education. Ideally you would not be alone with your thoughts. However, being alone with our thoughts is often the reality of our non-ideal circumstance and deserves respect. How does one give their own selves good counsel?

Keep it simple. Work with your paradigms you know about and try to tease them apart to clarify where your feelings and thoughts are coming from. Am I sleepy? Am I doing something to my body that isn’t healthy? Is someone doing something to me that must stop? Peel away the reasons why these things are happening. Don’t stumble over them at your most basic level. There will be time later. Keep your counsel on basic needs. Simple. The rest comes naturally, of its own invitation – the layers and complications of life.

To be honest, despite the dangers of taking our own counsel, we do. A friend to yourself does this simply, because that is effective. Like any good teacher, we can.

Self Care Tip #14 – Basic counsel is effective counsel. Be a friend to yourself.

Keep It Simple

Being a friend to yourself is obviously a changing effort, depending on your needs. It includes many intersecting paradigms including physical health and biology, genetic predisposition, coping skills, what you do to your body, what is done to your body (such as trauma), emotional triggers, spirituality. I’m sure there are more that we will continue to learn about through the ages.

Deciding where your energies will go can be more objective when we tease apart these paradigms. For example, if I’m tired during the day, have irregular sleep hours, feeling emotional and irritable, I’d start with sleep hygiene. This basically says that if you aren’t having sex in your bed, all you get to do is sleep. No food, no phone, no tv, no reading; just sleep.

Where you are going to spend your energies should be as basic as possible. As preventative as possible. As elemental as possible to start out with. Although the efforts you make shift with your needs, being friendly with yourself means picking your battles wisely. You only have so much energy. Keep it simple.

Self Care Tip #13 – Keep it simple. Be a friend to yourself.