Month: July 2011

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Say Yes to Medication And No To Drugs

Please don’t call them drugs.

Image via Wikipedia

Today I spent eight hours in the company of many neuroscientists.  Smart folk.  People I look up to, want to emulate and learn from.  It was an honor.  We covered different stimulating topics about serving our patients, diagnosing better and the development of our field of practice.  We connected collegially, ate too much chocolate, exchanged cards and talked about each other’s families.  I hope to meet them again soon at future related conferences and continue learning from their experiences and study.

The one thing I do not like about any of these meetings however, is hearing people who know better (if they thought about it) naming our good medications “drugs.”

Drugs.  Yuck.  What do you think of when you hear that word?  I think of stigma, addiction, substance abuse, ruined families, fathers who do not come home, needle marks or powder on mirrors, low-living, illegal behavior, dealers, hepatitis and so much more – very little of which is good.  Drugs.  I cannot number how many patients I have spent oodles amount of time on talking them away from the stigma attached to medications because they thought of them as “drugs.”  Blah.  It is not anyone’s fault but we can start over when ever we want to, so let us.  It is time.

Who thinks of anything that actually improves us when thinking of drugs?  Who thinks of life-saving remedies, disease cures, hope, ability to feel pleasure again, forgotten shame, ability to hold a job, restful sleep, speaking well in public, desire to live restored or a mother who no longer wants to drown her baby?  Do you think of that when you hear drugs?

Let’s get together on this and forget the word that carries so much loaded negative meaning.  It is a disservice to ourselves – physician, scientist, grocer, student, surviving family of a suicide victim, newborn baby, patient and all of us who have any connection whatsoever to disease and treatment.

Drugs.  I think of First Lady Nancy Reagan‘s famous campaign in the 80’s, “Just Say No!”  That is not what we want to say or hear when we write or receive a prescription to treat and to heal what can be healed from a debilitating disease.  Just say yes, please.

Medication.  Not drugs.  A word does matter.  A word carries emotion on it like the smell of cookies baking in the oven or the toilet that was not flushed.  A word can start a war or inspire forgiveness.  Words matter.  Words can be part of what helps us be better friends to ourselves.  Why not use them to our advantage?  Let us change our culture and decrease stigma with this simple word – “medication.”

Maybe when I am able to get together with my colleagues again, maybe next year even, we will be using the word “medication.”  Maybe it will be because of the shift in culture people like you and I can start now.

Self-Care Tip:  Please forget about the misunderstood word, “drugs,” and say yes to medication.  Be a friend to yourself.

Questions:  What do you think of when you hear “drug?”  vs. “medication?”  Is there a difference to you?  To you think it would matter to culture and your “Me” if we used “medication” to refer to prescription therapies?  If so, how?  Please tell me your story.

Related Articles:

Fears of Addiction To Medications For Brain Illness

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Let Him “Save Face” Because it is Friendly To Yourself

Your argument is invalid.

Image via Wikipedia

If you’ve argued, here’s what I want to ask you today:

Are you getting what you want?

That argument we had, knowing the pristine rightness of our position, knowing we have taken the fall so many times for reasons as loaded, knowing we’ve been disadvantaged, our pearls were trampled and we knew and we argued because we thought we finally should.  Was it friendly to Me?  Choosing to argue.  (There we’ve already passed up the victim role and claimed accountability for the argument.  We chose it.)

The question is what is most friendly to Me?  To be right?  Hm.  What will we do with the rightness?  Sleep with it at night?  Will it clean our house?  Will we get anything for it?  Will it take us on vacation?  What ever the argument was about.

Most of us think we are right.  Now what?

Ellen had argued.  Not aggressively.  There was no volume or matter flying about.  It was short but potent.  A bit nuclear if you must know.  She was so in the right.  If she were a tooth, she’d be the brightest whitest one in the mouth.  Pearly white.  An incisor perhaps.  She gained ground but lost her goal.  Now, neither of them got what they wanted.  They just got what any one gets when they argue.  Lonely.

Mass General put out a great guideline to conflict resolution I’ve reference below if you want to peruse …or tattoo it to your arm.

Basically, if you want to get something, let the other person save face.  You ain’t getting much by being right.  Think about what is friendly to yourself and remember that friendly is not what is easy, natural or desired many times.  It is what improves you and gets you what you really want in the big picture.

If you can’t do this even though you are deliberately trying, it may be that it is a symptom of brain illness and needs medical care.

So how am I doing in our argument?  Smile.  Are you getting what you want?  Have you ever been mid-stride argument and been able to change the direction of your projection?  Have you ever been able to stop yourself once you started and chose to be friendly with yourself rather than just right?  How?  Please tell me your story.

Self-Care Tip:  You guessed it.  Let him save face.

Related Articles:

Find the Best Route To Your Destination:  Conflict Resolution

How to win Arguments

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Demanding Freedom and Other Oxymorons That Empower Our Self-Care

Désirée Nick at "Oxymoron" in Berlin...

Désirée Nick at "Oxymoron" in Berlin, 1999

I read today on bipoblogger’s blog,

I am trying so hard to keep my head wrapped around keeping a hold on this broken heart/life balance/bipolar thing.  It’s been complicated by stupid migraine headaches.  It’s hard to make sense of things and to pay attention.

Today while I was waiting for my laundry to dry, I began writing some deep thoughts, deep like I didn’t want to deal with them. I basically wrote a page of self-help advice.  I appreciate my stubbornness.

My answer:

This sounds like a woman of courage doing it, taking accountability for where she is at, afraid maybe but pressing on to start over any time she chooses, demanding her freedom to self-care.   Demanding freedom seems like an oxymoron but this is what is called for when we feel trapped.

I will add to this “answer” that self-care often seems like an oxymoron.  Such as using the brain (the same organ that is diseased) to figure out what it’s behaviors and emotions mean or everything starts and ends with Me (when we know that there was a beginning before Me) – we see the weaknesses and the conflict and we say yes.  I am an oxymoron.  I am good and bad.  I am healthy and ill.  I am growing and dying.  I am flawed but perfect.  I’m sure you have more.

Demanding freedom is a basic tenet of self-care.  We say that despite the limitations in our lives, in our decision-making, in our suffering or pleasures – despite all, I am free to do self-care.

Questions:  How have you managed to demand your freedom to self-care?  What oxymorons in your life are empowering you in your self-care?  Please tell us your story.

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Are You Empowered to Start Everything and End Everything With Me?

Yesterdays blog-post brought a few neighborly questions for us to follow-up with.

One is regarding emotions from bluebee.  Is jealousy medical?  Followed by, What part of emotion is under our control?  Indeed.

Second, Sarah quietly slipped the question under our door of how to respond to emotions and behaviors that come from brain illness.  How?  Indeed.

Third, Carl banged a little louder when asking, what keeps him in a relationship with someone who is maltreating him verses leaving?  Indeed.

There is a nice flow to these.  They are leading into the next and circle back.  Emotions and behaviors come from the brain, much which is out of our control and some of which is.  The choice to engage in the life of the ill is like any other choice.  Our own.  If it matters to us if the way the brain is working in the “other” is in their control or not, we can spend more time trying to sus that out.  I’m not sure myself when I get it good from someone mean, but it has become easier to take care of my junk rather than there’s.  For that, I will say a million thanks.  If I’m getting yelled at, I do the checks on myself – anxiety? fear? anger? fatigue? shaking? dizzy? tone of my voice? do I know what this person is yelling about? (most often it has nothing to do with Me), empathy? empowerment? You’ve told me that you are growing in similar refreshing ways.

Face Down w/Laundry and Gwen Stefani

Image by NCM3 via Flickr

I’ve seen this play out a little in my children.  My daughters and son are supposed to do the laundry every morning before they play.  I don’t know how many years now, but their arguments haven’t changed.

I’m doing this all by myself.  No one is helping me!

Mom!  He’s just laying on top of the clothes!  

Mom!  …

These questions above…;

  • where emotions and behaviors come from,
  • control over biological symptoms,
  • do I respond to others with brain illness
  • or do I walk away

These questions don’t mean much if we don’t find where our empowerment comes from.  Me.  Everything starts and ends with Me.

I’m ill for reasons I have nothing to do with, yet I will be accountable for myself and how I affect others.

I feel emotions I didn’t ask for, behaving ways that I am a spectator to rather than a whole person, yet I will do what I can to gain health.  In that, I have control.

I surrender what I don’t control to my Higher Power.  I take medication.  I exercise, guard my sleep hygiene and get regular sleep, eat responsibly, gather and engage community, attend therapy groups and/or individual, I try while at the same time I let go, I love my flaws as I love my perfections, I try to develop my natural genius, try as often as I can to pour any energies I have in that direction as I know I will heal faster, enjoy life more and be more successful at all my efforts when I do.

It reminds me of that saying, that if I have success, it is from standing on the shoulders of giant midgets.  We are all flawed.  We are all wonderful.  We are supported by others who also are full of flawed perfections.

Do I have control?  You bet.  …And no way.  Always, there are both.

Do I talk when someone is mistreating me? or mistreating themselves by neglecting their own self-care? by letting their illnesses shape their lives?  Do I walk away as that may be what my self-care demands.

Everything starts and ends with me.  There are a lot of stops along the way with other forces, but empowerment is mine.  Indeed.  That’s what I hope my kids will learn when doing the laundry.

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Emotions and Behaviors Will Get Better As You Heal.

Punch to the Face

Image by Ninja M. via Flickr

Don’t worry.

When you hear that, don’t you think violent thoughts?  Or how about, “Calm down?”  Got to love that.  I have visuals of my back swing.  Sure.  You might call them hallucinations.  I’ve never actually hit someone but I have pulled into ready position.

Here’s the thing though.  After all this on-and-on about taking care of ourselves, I have found myself saying things that get awfully close and I’m looking out.  Pretty soon I’m afraid I’m going to get it.  (I’ve got my eye on you!  And you!)

Here’s what happened.  Augustina was wondering what to do about her best friend.  They had quarreled and then quarreled again.

Naming someone, “best-ie” sounds pubescent but Augustina was no child.  Her best-ie had been her chosen family (as Jackie Paulson reminded us yesterday)  since she was twelve, fat and leaked.  Kids were laughing.  Future Best-ie wasn’t.  That’s the kind of girl she was.  Safe; a light in a house that she had gone toward naturally and that had not been put out by Augustina’s misty self.  Wet face, stained pants, fat neck and pimples – Future Best-ie wasn’t laughing.  And that’s about all it took.  She was her friend.

Why had Augustina and Best-ie quarrelled these thirty-some years later?  This was am apparent mystery to Augustina.  You know those kind of mysteries, when they belong to only one person while everyone else with the answer key is looking on.  It was almost like she was standing there, twelve-years-old and bewildered.  This time though, Best-ie wasn’t on her side.  Or so she thought.

Truth is, Augustina had been mean.  She was not keeping dates, she argued easily and she was more self-absorbed than the color black.  It had been months now and then they quarreled.  Augustina missed all the prodrome, the warnings, the recommendations from family, other friends and including Best-ie to get insight and help.  To Augustina, this quarrel stood alone and she was being misused and misunderstood.

So what do we do?  Do we discuss Augustina’s behavior?  Do we explain her problems?  Maybe.  But only long enough to help her join our treatment team.  Once she’s in treatment, we wait.  We for reasons of self-preservation won’t say, “Don’t worry,” but we will come close.  Why?  Because we know that many of her problems as perceived by others and herself will disappear when her brain illness heals.  Do you believe that?  Where do you think her emotions and behaviors are coming from?

See blog post, There is Less Space Between Emotions And Science.

Questions:  When have you seen maltreatment from others that feels personal to you appear without provocation?  When have you seen someone you trusted change into someone who is mean, angry, selfish and reject you when they never did before?  Did you see the opposite happen when their brain illness was treated?  Please tell me your story.

Self-Care Tip – Calm down.  (Duck!  I see you and I’m outta here!)

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Seek To Know Your Uniqueness

He who seeks truth shall find beauty.
He who seeks beauty shall find vanity.
He who seeks order shall find gratification.
He who seeks gratification shall be disappointed.
He who considers himself the servant of his fellow beings shall find the joy of self-expression.
He who seeks self-expression shall fall into the pit of arrogance.
Arrogance is incompatible with nature.
Through nature, the nature of the universe, and the nature of man, we shall seek truth.
If we seek truth, we shall find beauty.
—Moshie Safdie, TED 2002

Questions:  What direction does this offer our efforts toward friendship with ourselves?  Will you give us a personal example?

Self-Care Tip – Seek to know your uniqueness

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Deliberately Setting Myself Up To Improve

dayspa-1

Image by samuelalove via Flickr

Self-care is about improving life, not harm.  Even though it includes doing things we don’t enjoy and sometimes hurt, it doesn’t harm us.

That’s a useful meter-stick when we wonder about something in our life.  Is this harming us?  Including people.  Do I feel better about myself when I’m with them?  Do they help me become a better person?  A better friend to myself?  Or, do they turn me toward things that harm me?

When thinking about our days activities, our choice of employment, things we put in our body, put them by this “No-Harm Meter-Stick” and see how they measure.

A deliberate check-point in my life is consistent with a deliberate goal.  …”I want to be  healthy.  Is this improving my health?”  “I want to have good self-esteem.  Does this improve my self-esteem?”  And the journey is consistent with the beginning and the end.  If the goals for the moment isn’t consistent with our big picture goals than they might not be the goals we want.  Like putting substances in our body that feel good for the moment but harm our life.  There are innumerable examples of this but you get the picture.

Questions:  What checks you when you need it?  What has been useful to remind you in this area or that to be friendly to yourself?  Please tell us your story.

Self-Care Tip – Deliberately set up feedback in your life to let you know that you are a friend to yourself.

See blog-Post:  “You” Are The Best Gift

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The Gift of Desperation

Life (23/365)

LIFE

Misty sounded relieved,

Yes.  That’s it.

She had just realized that life isn’t fair.  Sure.  She knew that before, but she just realized what she knew.  Don’t we all love that moment when our senses join up – sight, hearing, taste, touch, smell, emotion, intellect, spiritual and the rest.  That is a lot to coördinate after all and sometimes some of them don’t make the train.

Misty was a single mom of three.  Her ex-husband was what she called, “Disney-Dad,” and her kids relished their time with him.  Misty complained that she didn’t get to spend the special times with her kids.  She mainly took care of them, but missed out on irresponsible fun.  She was sure her kids wouldn’t look back and think of her like they would their father.  She was getting angrier about it all the time, ruminating about it and it was getting in the way of her ability to connect with others and feel pleasure.  There it was in front of her blocking her from seeing her kids even, let alone herself.

Then after weeks of this along with medication and talk therapy, she told me,

Yes.  That’s it.  Life is not fair.  There are many other things in my life that aren’t fair either and if I look for them, I could spend my whole day every day counting them off.  

It broke my heart a bit to hear her and see her there.  Humble like that; she would I think affect you the same way.  So real.

Yesterday, Carl D’Agostino replied to our post about growing our understanding of our choices beautifully.

…we wait until we are at our wit’s end before we seek assistance…. considering reaching out as personal failure or inadequacy re: our own self-esteem…. Foolishly we wait until our way just is not working anymore. That is why AA calls this a gift: the gift of desperation. …For many, the depths into which we have succumbed are now found not to be so deep at all and in fact, ladders are readily available if we use them in recovery. 

Ah Carl.  Say it again.

The gift of desperation.

Too good.  Don’t you think?

Questions:  Have you ever received the gift of desperation?  What did it bring you?  Where did it take you?  What did it do to you?  Do you still have it?  Please tell me your story.

Self-Care Tip – Celebrate your gift of desperation.

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No One is Choosing For You – Know Your Choices For Health

Yesterday we asked some pithy questions re: Why Psychiatry?  Your responses were received with gratitude and humility.  It takes courage to understand our connection with psychiatry considering ongoing stigma.  Today we’re reviewing that some and taking it one bit further.

When referred to a psychiatrist for medical care, we can feel confused.

Why is my physician sending me away?  Does this mean I’m at my last resort?  Does this mean I’m that sick?, or,

Does he think I’m crazy?  I’m not insane!, or personalizing with,

Does my physician not want to work with me?  I’m that bad of a patient?  Cast off?

Our expectations when we first see our psychiatrist are often also similarly reactive.  Maybe,

I’ll give this one chance but if she doesn’t fix whatever it is that’s going on, I’m out of here. 

I am not going to be dependent on medications!

I do not want to be made into a zombie!

Are we looking for a cure?

Also, we might be confused by the amount of time that she spent with us the first appointment as compared to our follow-up appointments.

I need to talk about my problems!  I need time!

There’s a lot to take in.

Unfortunately, when we are referred to a specialist, often our referring physician hasn’t effectively communicated as to why we are being sent there.  This is for many possible reasons, including Me not hearing him.  Many other reasons are also understandable with insight but we aren’t always given the opportunity to hear the inside story of why our physician does what he does.  That doesn’t mean we have to accept it.  But if we do, we did and it’s our choice.

Choice

Image by Scarygami via Flickr

We have choices.  Before accepting the referral, we can ask, Why?  Keep asking why until we are satisfied with our level of understanding.  Schedule a follow-up appointment with the referring physician if necessary to gain more time if we think we need it.  Sometimes, despite our physicians best efforts, we won’t understand as well as we’d like and we have to make our choice with the information we have.  We can read up on our symptoms ourselves.  I read in Twitter from @NathanBransford,

The 11th Commandment: Thou shalt not ask someone a question thy could easily Google thyself.

That’s ridiculous although I cracked up.  The World Wide Web comprehensively and including Google or any other source within that World Wide Web are not designed to practice medicine.  When we read something, we need to ask for qualifications behind the author of the print, references and so forth.  The Internet is a tool worth our attention but you decide how far you are willing to take what you read before you consult with your own physician.  I think if Doctor Seuss were alive today, he’d write a book (or many) about health care; Oh The Tools We Can Use!  (Maybe Carl and Thysleroux will do a series or a post on this?  Should be fun.  – Asking, “Why?”  Becoming our own friend.  Connection.  Going towards shame, pain, anxiety.  Growing bank – and more.)

And so that brings us to today’s questions:  What choices do you perceive you have in referrals like these?  In your continuing medical care?  In your ability to collaborate with your physician?  In obtaining an understanding of your illness(es)?  Please tell me your story.

Self-Care Tip – Grow your understanding of your choices for your health and medical care.

Related Articles:

  1. Stay Connected For Your Sake and For Theirs
  2. Connecting To Others Is a Condition of Freedom
  3. Safety in Connections
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Why Psychiatry?

An American Lady butterfly against a cloud-fil...

Image via Wikipedia

If we have ever seen a psychiatrist, then there has been some point in our lives when someone told us to go or we told ourselves.  I have some questions for you.

How did you hear about psychiatry?

What are your thoughts?

What did/do you understand?

Please tell me your story!

Self-Care Tip – Explore your connection with psychiatry.

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Love Another Man To See The Face Of God

Hello friends. Missed you yesterday. We are on our way home from the anniversary weekend plus a few other significant dates wrapped in there.

The Marriott hotel we stayed at was sold out so getting two adjoining rooms (who wants to get arrested for child abandonment on their anniversary?) took extra maneuvering by Marriott’s good staff along with my husband’s gentle ways. We landed in an upgraded suite the size of a small country for the same previous price. I’ve never been in something like that and we all felt like superstars.
(This is sounding newsy.)

Anywho, the next day we joined my brother and his family at a matinée showing of Les Miserables at the Ahmanson Theater – we’ve planned this for a year. There we were; a few adults and a long string of children all polished and shiny. We had bought feathered masquerade masks to play it up and were dressed to the nines. The house was sold out.

We had prepared ourselves with the soundtrack, Victor Hugo‘s unabridged printed English translation (didn’t finish that yet this time around – hoping still), the 25th Anniversary recording at the The O2 and lots of chat. The kids were happy to go with their cousins and you can imagine that all should have gone well.
What to say.  Some things we must prepare for in other ways.

Sitting there, my son on my lap and just the slightest sound of tearing chocolate bar wrapper, and the head in front of us turned into a face with a mouth,

Be quiet!  

Some minutes later, my son was drinking from his water bottle,

For G–‘s sake!  Put that away!

There was more from our theater-head and after three otherwise beautiful hours, Les Miserables was over.  A lady a few chairs away from the theater-head whom I think was in his party said,

Next time choose to take them to a Disney Production, would you?  

Later in the car, my girls were wondering about the, “super mean people in front of us,” and I remembered the words still fresh in my thoughts,

To love another man is to see the face of God.

How to love?  By starting with loving me.  Who knows about those people?  I don’t.  I don’t know anything about them at all.  I can just work my junk over and grow my own bank.  Then I can love even people who are mean to my beautiful kids.  I can think about their possible frontal lobe dementia, disinhibition and medication non-compliance and empathize.  I can think about their torn families and children who’ve abandoned them and come home only on Christmas.  I can think about their missed opportunities to claim their freedom to self-care.  By starting with me, I can enter into their hurt and see that through their eyes, they see an angry unsafe world and they are suffering.  That is something of what Victor Hugo may have talked about.

When I was younger, a one o’clock Sunday matinée was when kids came but maybe not any more.  Ah well.  I saw the face of God.

Self-Care Tip – Love another man to see the face of God.

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Give Because You Want To, Not Because You Are a Victim To Their Taking

Giving

Self-Care Tip – Give to others because you want to and have so much to give.

People who live in chaos, generally do because they want it. They are the ones who think you are the best one day and are screaming you down in the next. They pit team-members against each other. Without the team-members knowing what happened they are now distrustful of people they used to trust, feeling suspicious and defensive. The people who live in chaos have their own gravitational force for extremes. Extreme behavior finds them. They are suffering. No doubt, but at the same time, they thrive on this in some way. They choose it. Even so, they don’t know their choices and are ever the victim in any crime scene.

I have seen a few amazing life-stories unfold where these habits were reorganized into friendly behavior. It took years but every time I see these people, knowing where they came from, my mouth is open, my soul lays in splayed humility and I have new hope in the Love that heals us.

Clara was one such as this. I’m not going to tell you all of her story but let you know that now she has woven a net of support around her, people she spends time with, peer groups she attends. She takes her medications and doesn’t change the doses without discussing them first with me. She feels pleasure without having to be at an extreme.

Clara still has some people in her life who haven’t done this for themselves. Who haven’t worked on themselves and become their own friend and she has been tempted to “save” them at times. Clara just told me the other day,

I am not responsible for the fact that she doesn’t have any one else but me.

Clara has been tempted to stop investing in herself to invest more time caring for those who don’t care for themselves. But she didn’t. She maintains her health and investing in herself and she is still living. She gives to others because she has so much to give. Not because she is a victim to their taking. Clara continues to fight for herself and I respect her. I am learning still about doing this for myself and hope you are too. Out.

Questions: Have you ever seen these kinds of miracles in people’s lives around or in you? What was it like? Please tell me your story.

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